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Kristina, Undiagnosed Bio

Hello everyone, My name is Kristina and i am 21 years old.I am so happy that i found this site because there are so little information about Cushing’s, especially real people stories. If not internet...

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Peggy (concerned for spouse), Pituitary and Adrenal Bio

I’m married to my best friend who’s health has steadily declined for around 15 years.  High Blood Pressure, Diabetes, weigt gain, mood change are part of the decline. He had a pituitary tumor removed...

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Adrienne, Steroid-Induced Bio

Another Golden Oldie.  The last update Adrienne submitted was October 7, 2005. ~~ I recently wrote this and thought it is pretty good for a bio as it explains the diffrent types of diagnoses and...

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Fabiana, Pituitary Bio

Fabiana had transphenoidal surgery (pituitary) July 30th 2004.  She had a recurrence after seven years of being Cushing’s free.  A second pituitary surgery on 10/26/2011 was unsuccessful. Another...

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Amy (spunkybluecat), Pituitary Bio

A Golden Oldie from July 11, 2011 ~~~ Hello, my name is Amy. I was diagnosed with Cushing’s last November and had surgery to remove the pituitary adenoma in March. It took me FOREVER (over 3 y) to get...

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Wendy, Undiagnosed Bio

A Golden Oldie Hi My name is WENDY from New Zealand …I am 57 yrs young…I am a nurse…..it was once suggested by mail to my GP that I may have episodae cushings…and that it would be intersesting to take...

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Trish, Steroid-Induced Bio

Hello, my name is Trish. My wife Lynn (we are lesbian civil unioned partners in NJ) has been diagnosed with Cushing’s Syndrome (for the 2nd time in 4 years).  I love her very much and would do...

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Andrea P, Steroid-Induced Cushing’s

What can you do when the cure might be worse than the disease? “Have you thought of losing some weight? This would most likely take care of the many complaints you have.” The all too eager yet...

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Mary Lou (MarLo), Undiagnosed Bio

I am the mother of a 19 girl who is currently being evaluated for Cushing’s Syndrome/Disease.  My daughter is in her first year of college and over the past eighteen months, she has gained close to 50...

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Port woman optimistic in fighting her ‘ugly disease’

By Sharon E. Siegel For the Gazette Published: 2:00 AM – 05/16/14 Anyone who knows lifelong Port Jervis resident Katie Onofry Sandberg knows that her upbeat personality does not let much get her down....

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In Memory: Diana Crosley

Portland, OR, Cushing’s Conference, October 2003, Day 2, at a “House of Magic” dinner. Portland, OR, Cushing’s Conference, October 2003, Day 3. It was very windy on the Oregon Coast! Brighton, MI:...

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Fabiana, Pituitary Bio

  Well it has taken me a year to write this bio…and just to give some hope to those of you just going thru this process…I have to say that after surgery I have not felt better! I am back to who i...

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Sherry C, Pituitary Bio

    I have been very ill for many years now, since 1999 that I know of. But it had always come and gone, until 2004 when it decided to stay. At first it was a mystery as to what was wrong. I was...

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Elizabeth F (ElizabethF), Suspected Cushing’s

Born with congenital hypothyroid (which was undiagnosed until 45). My thyroid is the size of a lima bean! Discovered that I was exposed in utero and as a toddler to sky-high amounts of dioxins — i.e.,...

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In Memory: Diana Crosley

Portland, OR, Cushing’s Conference, October 2003, Day 2, at a “House of Magic” dinner. Portland, OR, Cushing’s Conference, October 2003, Day 3. It was very windy on the Oregon Coast! Brighton, MI:...

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Emily B-C (EmilyBC), Undiagnosed Bio

  Hi.  I am a 40 year old female who has been feeling “not quite right” for almost 10 years.  I have been tested on and off for many different things and have been diagnosed with Epstein Barr, Adrenal...

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Katrina (Coloradokat), Undiagnosed Bio

Hello, I am not going to repeat the standard history here. I have been reading other bios and I am excited to read that so many others have the same issues I have and I am sad to note that they have...

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Trish, Steroid-Induced Bio

Hello, my name is Trish. My wife Lynn (we are lesbian civil unioned partners in NJ) has been diagnosed with Cushing’s Syndrome (for the 2nd time in 4 years).  I love her very much and would do...

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TONIGHT! Interview with Fabiana

  Fabiana will be our guest in an interview on BlogTalk Radio  Wednesday, October 21 at 6:00 PM eastern.  The Call-In number for questions or comments is (657) 383-0416. The archived interview will be...

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Kali, Undiagnosed Bio

  Hi Everyone, My name is Kali, I’m 20 years old and I’ve been on this journey for a year and a half now. Before this all started I was petite 5’3″ and 123lbs at my heaviest, I was incredibly active,...

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